Thursday, April 21, 2011

Hanna's Story

Age 12

Rogue Valley Medical Center

Hurler's Disease

Like many sisters, Morgan and Hanna shared almost everything. But when Hanna was diagnosed with Hurler’s Disease, Morgan shared something that would change both of their lives forever—her bone marrow. Hurler’s disease makes it impossible for Hanna to breakdown starches produced in her body and those starches attack various organs and structures in her body. Morgan’s marrow helps Hanna’s body produce the enzymes needed to reverse those attacks.

Hanna continues to visit Rogue Valley Medical Center for infusion therapy to replace the enzymes her body doesn’t produce. The infusions will continue for the rest of her life.

But that certainly doesn’t stop Hanna from living with gusto. From riding ponies to flying hot air balloons, she lives life to the fullest…a gift she knows is in great part to her sister and the incredible medical staff at Rogue Valley Medical Center.

1 comment:

  1. Way to go Hanna! It's great that you don't let Hurlers get you down. My son, Caleb, has Hurler. He was diagnosed when he was 13 months old, and had his transplant at 18 months. He's had a lot of bone issues since, but he generally doesn't let much hold him back either. He's 10 now.

    Kelly Waddell